The ongoing care for someone with Alzheimer’s or dementia is equally important as getting the initial diagnosis right and ensuring that their living arrangements provide them with the support they need in a comfortable environment.
Patients are extremely vulnerable when their mental capacities are on the wane and therefore require a great deal of support and reassurance. There is a lot you, your caregivers, your family and friends can collectively do to make your loved one’s life that little bit easier, and in many cases enjoyable.
There are lots of practical tips to help those living with dementia, as well as their carers, from the patient’s washing and bathing habits, eating and drinking at and between mealtimes, to dressing and going to and from the toilet. All these things need to be thought about and the utmost care taken with empathy and patience.
It all contributes to maintaining confidence, some independence and security for those living with Alzheimer’s or different types of dementia.
From consulting with our care advocates on who is best placed to help you, to representing you and pressing your case for continuing care with the NHS, Eldermera can ensure your ongoing care provision meets your specific needs.
Changes in condition and therefore in the delivery of care are inevitable, so you will need to plan for this and be ready. One of the most important aspects of ongoing dementia care is record keeping and making sure that medical records are up to date and in one place.
You cannot always rely on the NHS or your care home to complete the exact picture here, because it is more than likely that the patient is being treated by several people or organisations: their GP, care provider, local hospital, social services, allied healthcare professionals and so on.
In the ideal world, these organisations would share their information across the board, or you would have one set of electronic records all in one place which can be easily updated whenever there is a change to treatment or care delivery. So it is a good idea for you to take responsibility to ensure accurate record keeping, from changes in treatment and medication to care home ratings and performance.
Keeping accurate and consistent care records help document the process and help others in the process understand the situation.
Whenever there is a meeting, discussion or decision taken about treatment or changes to care arrangements, make a note of it: the date, time, who was involved in that decision and a summary of the current situation. All this contributes to consistency and accuracy of your ongoing care or that of a loved one, not least because some organisations who are involved may not keep adequately detailed information and will often have changes in personnel which affect continuity of that care.
And if you ever feel that something has gone wrong, or that one organisation is saying something different from another, do not be afraid to request the medical records they hold for you or the person for whom they are delivering care.
It’s a time consuming and often complex process, but there are always people on hand to support your case, whether it’s your local GP or even your MP.
If you are having trouble obtaining medical records, Eldermera can help you with that too.
Why not schedule a free consultation today?